PM360 has inducted Amalia’s Story to their Masterclass of Storytelling. SNOW created this initiative for Alnylam to serve people living with acute hepatic porphyria (AHP). The condition is commonly misdiagnosed because it is so rare. That’s why it is important to raise awareness of AHP and of the genetic tests that are available to provide diagnostic certainty.
One of the most effective ways to reach the relevant audience is by way of patient storytelling, and online on-demand formats are an important channel in the mix. This initiative tells the story of Amalia’s experience with AHP through her own artwork in an engaging, interactive way.
Each painting represents a key milestone in Amalia’s personal journey from diagnosis with AHP to treatment. To achieve the desired effect, it was important to capture the actual brushstrokes as they came down on the canvas. You can access Amalia’s Story here: amaliasstory.com.